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These were the limitations/parameters I set on the AI exploration of a mock up of what is achievable if CAMHS had their ownΒ professional and parent access hub on 'Patients know best'Β .Β
1, There is no moneyΒ
2, The NHS is very clear that the 'Patients know best' app is secure and there are valid fears about data breaches
Β 3, 'In theory' there is no need to reinvent the wheel and adapting already written code to populate a CAMHS 'area' is doable and cheaper than opening a whole new projectΒ
4, There is merit in having whole family on one app.
5, You would only have to learn one apps quirks which will help with familiarity and willingness to use the provided opportunity.Β
This is just the front cover for the CAMHS dept with possible login?
Would the parent need to login again inside the PNB app to access their child's info?Β
IT WORKS well a little bit so click through to the hub and press buttons - This gives some idea of what could be achieved.
Obviously CAMHS spectrum of patients is vast but I have tried to stick to things I as a parent was interested in having - often asked to make a sleep diary etc... it would have helped me enormously to not have has to reinvent the wheel at this point or look up a sleep diary app or a diet app etc... to be able to just send the info straight to the NHS (if I made a written diary I would never remember to bring it with me, ADHD fun -Β
I like the idea of one diary I can pick the tabs for.... so your child may have issues with school attendance - sleep - and food restrictive behaviour... having a diary with a tab for those three specific things - School diary - did they go in? If so for how long and how did they feel about that? And any comments to pass to the Dr -Β
Diet -Β self-explanatory but in a moment I am going add a pattern recognition aspect so things that could be missed like - he always eats the bananas or -Β he won't eat shepherds pie but he does eat cottage pie - stuff the parent will already have picked up on from a like and dislikes point of viewΒ - but from CAMHS side we can go further and screen the food the child manages to eat for its nutritional contentΒ - so over the week the child ate... such and such - through the nutritional calculator - this means over the month of September the child did not reach recommended levels of vit c, protein etc.... and then the app can flag this up for the parent and advise to, for exampleΒ -Β blend something the child eats (because we know what the child likes form the app data) that has a good source of what the child a low in...Β
ALL of diaries should be individually downloadable. So the therapist ask the parent keep a sleep diary but as they have already got one going with you they can just download it.Β
All diaries should be accessible in graphs and other 'views', not all parents can do words.Β
This is an example of a data export of all the different diaries at the same time.Β
But at the bottom there is a bit of analysis - in this week period how many hours of sleep were achieved and comparison to the previous weekΒ -Β again with a period of three months... in this three month period (before treatment started) the child slept for...... and the following three months the child slept for ..... is there an improvement deterioration etc...Β
and this should be broken down like that over the whole spectrum of diaries - how many melt downs - periods of anxiety - protein intake did it go up or down in this moth period did that have any relation to bobby being more tired this month etc
The following examples are just variations on that kind of theme.
Data input run through pattern recognition algorithms - detecting things like:Β
How long is a child effected by social interaction
nutritional levels vs energy levels - energy levels vs activityΒ - activity vs food intakeΒ and so on cross referencing all areas and using collated data to spot patterns...Β
Not just nutrition, sleep, and their effects on the quality of the child's life.... but also safeguarding - Bobby has a huge meltdown and refuses to eat every Tuesday - the diary say he is looked after his Nanny every TuesdayΒ she picks him up from schoolΒ - every Tuesdays Bobby reports he has stomach ach and wont go to the toilet -Β
AND OK I am not say Bobby here could just be extremely anxious due to 'normal' autistic responses to a change in routine and not having access to his mum - but also there could be a safeguarding issue here that can be picked upΒ -Β for example maybe the grand mother goes home via the pub and bobby just can't cope with it. or something worse which I don't need to write here because we already know what worse can be...
Obviously it is not CAMHS job to route out child abusers through the medical data they are receiving - however being able to flag patterns good and negative give CAMHS and the parents more chance at getting the outcome for this child to be positive. We don't have to live in a world where we realise things by mistake or out of luck.... oh it was lucky I saw Bobby eating that kiwi fruit roll because I saw his skin go red etc...Β
That all said some parents will not be interested in filling in the data... but i would argue a weeks worth of patchy data filled in as things were happen is much more useful than my ADHD muddled ass rolling up and 'remembering' what has been going on.Β
That's a very relevant question, as system interoperability is key in the NHS.
Yes, this calendar functionality is entirely possible within the parameters of the Patient Knows Best (PKB) platform and its API structure.
Here's a breakdown of how the three main features align with PKB's capabilities:
Letters and Communications (βοΈ): PKB is primarily a Personal Health Record (PHR) and is designed to securely receive and display clinical correspondence (like letters, care plans, and discharge summaries) directly from NHS Trust systems. This is a core function.
Therapy Appointments (π ): PKB commonly integrates with patient administration systems (PAS) and Trust Electronic Patient Records (EPRs) to display all scheduled appointments in the patient's view.
Automated Flags/Alerts (π¨): This is the most advanced part and is achievable via the PKB API's write capability. A separate system (like the automated analytics we mocked up for the diary) could:
Read the diary data (sleep, food, etc.) using the PKB API.
Identify the clinical pattern (e.g., no bowel movement + low fibre = constipation risk).
Write the resulting alert (the "Flag Detail") back into Bobby's record as a structured clinical note or a message, which would then appear highlighted on the calendar dashboard.
In short, the calendar acts as an effective dashboard for the consolidated data, which is exactly what PKB is designed to manage.
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